Monday, April 24, 2017

Neurofibromatosis Network to host #NFStrong 5K Walk in Kansas City

Press release

Kansas City, MO - The NF Network is pleased to announce the 9th Annual #NFStrong 5K Walk for Neurofibromatosis (NF) in Kansas City, MO. on Saturday, June 3, 2017. For more information or to register visit www.nfstrong.org
The Event will kick off at 9:00 am at Macken Park, 800 Clark Ferguson Drive, North Kansas City, MO. Registration is $25 adults, $12 children (11 & Under), $6 (3 & under) or, Raise $100 and get FREE registration. Use promo code #KCStrong to receive 10% off at checkout.
We’ll have food, face painting, NF tattoos, NF Champion medals, fundraising awards, a fabulous silent auction and new NF friends.
The NF Network encourages and appreciates business contributions either in the form of event supplies, auction items and business sponsorship's. To learn more about this program, please contact Yvonne Glass  at https://nfeventimages.s3.amazonaws.com/uploads/resource/attachment/75/2017_KCMO_Business_Sponsorship_Letter___Levels.pdf
Proceeds will benefit the more than 100,000 Americans affected by Neurofibromatosis.
What is NF?
Neurofibromatosis (NF) is a genetic disorder that involves the uncontrolled growth of tumors along the nervous system, which can result in terrible disfigurement, deformity, deafness, blindness, brain tumors, cancer and death. NF is the most common neurological disorder caused by a single gene and is more common than Cystic Fibrosis, hereditary Muscular Dystrophy, Huntington’s disease and Tay Sachs combined. Because of NF’s close connection to many common diseases and disorders, such as cancer, learning disabilities, heart disease, memory loss, and brain tumors, research on NF stands to benefit 175 million Americans in this generation alone.
Who is the NF Network
The Neurofibromatosis Network was founded in 1988 as a 501(c)3 non-profit organization to join together several independent state and regional NF groups wishing to work together on national projects.
“The Mission of the NF Network is to find treatments and a cure for Neurofibromatosis by promoting scientific research, improving clinical care, providing outreach through education and awareness, while offering hope and support to those affected by NF.”

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